Protecting Health Information. Ensuring Data Integrity.
Protecting Health Information. Ensuring Data Integrity.
Other Publications
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K El Emam, H Sood: “Enabling COVID-19 Data Access Using Data Synthesis”, Privacy & Pandemics: Responsible Uses of Technology & Health Data; Future of Privacy Forum, October 27-28, 2020. K. Ghazinour, S. Matwin, M. Sokolova: “Monitoring and recommending privacy settings in social networks.” EDBT/ICDT Workshops, 2013. K. El Emam: “Risk-based de-identification of health information.” In Proceedings of the HHS Workshop on the HIPAA Privacy Rule’s De-identification Standard, 2010. F. K. Dankar and K. El Emam: “A method for evaluating marketer re-identification risk.” In Proceedings of the 3rd International Workshop on Privacy and Anonymity in the Information Society, 2010. M. Sokolova, K. El Emam, S. Rose, S. Chowdhury, E. Neri, E. Jonker, and L. Peyton: “Personal health information leak prevention in heterogeneous texts.” Biomedical Information Extraction International Workshop, published in “Adaptation of Language Resources and Technology to New Domains,” 2009. M. Sokolova and K. El Emam: “Evaluation of Learning from Screened Positive Examples.” Accepted by the 3rd workshop on Evaluation Methods for Machine Learning, in conjunction with the 25th International Conference on Machine Learning, ICML, 2008. K. El Emam: “A Multi-method evaluation of the practices of small software projects.” In S. Garcia, C. Graettinger, and K. Kost (eds.): Proceedings of the First International Research Workshop on Process Improvement in Small Settings, Pittsburgh, Technical Report CMU/SEI 2006-SR-001, 2006. G. Melnik and K. El Emam: “Third International Workshop on Empirical Evaluation of Agile Methods (“The Data Workshop”).” Proceedings of XP/Agile Universe 2004, Lecture Notes in Computer Science, Vol. 3134, Springer Verlag: 188, 2004. J. Daly, K. El Emam and J. Miller: “Multi-method research in software engineering.” In Proceedings of the Second International Workshop on Empirical Studies of Software Maintenance, 1997. G. Perez, K. El Emam, and N. H. Madhavji: “Customising software process models.” In Proceedings of the 4th European Workshop on Software Process Technology, Springer-Verlag, 1995. K. El Emam and N. H. Madhavji: “A method for instrumenting software evolution processes and an example application.” Presentation at the International Workshop on Software Evolution Processes and Measurements, Victoria, Canada, 1994. N. H. Madhavji, K. El Emam, and T. Bruckhaus: “An on-going study of factors causing process evolution.” Presentation at the International Workshop on the Evolution of Software Processes, Quebec, Canada, 1993. K. El Emam, N. H. Madhavji, and K. Toubache: “Empirically driven improvements of generic process models.” In Proceedings of the 8th International Software Process Workshop, 1993. -
This is a listing of published peer-reviewed abstracts from technical conferences.
S. El Kababji, N. Mitsakakis, X. Fang, A. Beltran-Bless, G. Pond, L. Vandermeer, D. Radhakrishnan, L. Mosquera, A. Paterson, L. Shepherd, B. Chen, M. France Savard, M. Clemons, K. El Emam: “Rescuing poorly accruing clinical trials with AI-generated synthetic data”, accepted to the Optimal Cancer Care Alliance Meeting, Chicago, USA (Virtual), Sept 11-12, 2023.
S. El Kababji, N. Mitsakakis, X. Fang, A. Beltran-Bless, G. Pond, L. Vandermeer, D. Radhakrishnan, L. Mosquera, M. Clemons, K. El Emam: "Can synthetic data accurately mimic oncology clinical trials?". Journal of Clinical Oncology, 41(16) Supplement: 1554-1554, June 1, 2023.
K.Cole, S. McGee, M. Clemons, M. Liu, F. MacDonald, L. Vandermeer, T. Ng, G. Pond, K. El Emam: "Evaluating response to interventions for vasomotor symptoms in patients with breast cancer: A patient-centered approach". Journal of Clinical Oncology, 41(16) Supplement: e24126-e24126, June 1, 2023.
Z. Azizi,S. Lindner, Y. Shiba, V. Raparelli, C. Norris, K. Kublickiene, M.Trinidad Herreror, A. Kautzky-Willer, P. Klimek, K. El Emam, L. Pilote, and the GOING-FWD Investigators: "A Comparison of Synthetic Data Generation and Federated Analysis for Performing an International Assessment of Gender Effects on Cardiovascular Health". Canadian Cardiovascular Society Abstracts, 38(10) Supplement 2: S119-S120, October 1, 2022.
Z. Azizi, T. Gisinger, P. Alipour, J. Harreiter, V. Raparelli, K. Kublickiene, M.T. Herreror, C.M. Norris, K. El Emam, L. Pilote, A. Kautzky-Willer, and the GOING-FWD Investigators: "Role of Sex and Gender in Access to Care and Cardiovascular Complications of Individuals with Diabetes Mellitus". Canadian Cardiovascular Conference, October 21-24, 2021. [Winner of Trainee Research Award (Clinical Section), and CIHR/ICHR Registration Bursaries]
Z. Azizi, V. Raparelli, C. Norris, K. Kublickiene, A. Kautzky-Willer, T.M. Herrero, K. El Emam, L. Pilote, and the GOING FWD Investigators: “The Association between Sex, Gender and Health Status of Stroke Survivors in the Canadian Population”. Organization for the Study of Sex Differences (OSSD) virtual Annual Meeting, May 3-6, 2021.
Z. Azizi, Y. Shiba, P. Alipour, F. Maleki, V. Raparelli, C. Norris, R. Forghani, L. Pilote, K. El Emam, and the GOING FWD Investigators: “The Importance of Sex and Gender Factors for COVID-19 Vaccination: A Sex-stratified Analysis Using Machine Learning”. Organization for the Study of Sex Differences (OSSD) virtual Annual Meeting, May 3-6, 2021. Z. Azizi, L. Pilote, V. Raparelli, C. Norris, K. Kublickiene, T.M. Herrero, A. Kautzky-Willer, K. El Emam, and the GOING FWD Investigators: “Sex, Gender and Cardiovascular Health, An analysis of Synthetic Data from a Population-Based Study”. Journal of the American College of Cardiology, 77(18_Supplement_1): 3258, 2021. American College of Cardiology 70th Annual Scientific Session, May 11, 2021. Z. Azizi, V. Raparelli, C. Norris, K. El Emam, L. Pilote, On behalf of the GOING-FWD Investigators: “The Association Between Sex, Gender And Health Status Of Stroke Survivors In The Canadian Population”. Stroke, 52:AP259, 2021. International Stroke Conference, March 11, 2021. Z. Azizi, T. Gisinger, U. Bender, V. Raparelli, C.M. Norris, K. Kublickiene, M.T. Herrero, K. El Emam, A. Kautzky-Willer, L. Pilote, GOING-FWD Investigators:
“Abstract 16147: Sex, Gender Factors and Cardiovascular Health in Canadian and Austrian Populations”. Circulation, 142(Suppl_3):A16147-A, 2020. American Heart Association Congress 2020.Z. Azizi, U. Bender, C. Tadiri, C.M. Norris ,V. Raparelli, K. El Emam, L. Pilote: “Sex And Gender Factors and The Cardiovascular Health of Canadians”. Canadian Journal of Cardiology, Oct 1;36(10):S21, 2020. Canadian Cardiovascular Congress 2020. -
L. Juwara: “Synthetic Data Augmentation for Mitigating Bias in Real World Data.” Synthetic Data Summit, London, UK, November 2023.
L. Juwara, K. El Emam: “Evaluation of Synthetic Data Augmentation for Mitigating Bias in Real World Health Data.” Department of Psychiatry Research Day 2023, University of Ottawa, November 2023.
L. Juwara, K. El Emam: “Evaluation of Synthetic Data Augmentation for Mitigating Covariate Bias in Real World Health Data.” T-CARIEM AI conference, Toronto, October 2023.
Mosquera L: "The generation of synthetic clinical trial data". ISPOR Europe Conference, Nov 2-6, 2019.
Mosquera L: "Experiences generating synthetic clinical trial data." Drug Information Association Global Clinical Trial Disclosure and Data Transparency Conference, Sep 19-20, 2019.
E. Moher and K. El Emam: “Get it right or obtain it correctly: The role of readability of consent forms in determining disclosure rates.” 2014 NAPCRG Annual Meeting, November 2014.
A. Essex, K. El Emam, L. Arbuckle, M. Tucciarone: “Secure Record Linkage: Encrypt, match, analyze.” Statistics Canada International Methodology Symposium, October 2014. K. El Emam, N. Corner, L. Arbuckle, B. Eze: “The De-Identification of a Large Electronic Medical Records Database for Secondary Analysis.” Center for Health Services and Policy Research, February 2014. E. Moher and K. El Emam: “Threats to security: Ironic consequences of secure data collection in healthcare.” The Society for Judgment and Decision Making Annual Meeting, November 2013. K. El Emam, L. Arbuckle: “Disclosing Small Geographic Areas while Protecting Privacy.” The Ontario Public Health Convention, April 4, 2013. K. El Emam, L. Arbuckle: “A Risk-based Methodology to De-identify Protected Health Information for the Heritage Health Prize.” 2012 American Statistical Association Conference on Statistical Practice. El Emam K: “Risk-based De-identification of Health Data.” 3rd North American Congress of Epidemiology, 2011. El Emam K, Samet S, Earle C: “Secure Logistic Regression of Horizontally Partitioned Data for PharmacoVigilance.” 3rd North American Congress of Epidemiology, 2011. Frescura A, Wong T, Mercer J, Mukhi Nizar S, Totten S, Jayaraman G, El Emam K, Babin C, Saginur R, Rodin R, Garber G, Samina Aziz, Kavanagh D: “Rapid Real Time Surveillance and Monitoring of Pandemic Influenza Severity & Associated Risk Factors Using Primary Care Electronic Medical Records (EMR).” CPhA’s 99th Annual National Conference Montréal 2011. K. Murto, U. Schwarz, K. Chowdary, I. Abushahwan, G. Bryson, J. King, D. Moher, K. El Emam, and W. Splinter: “A survey: Technology in a pediatric care setting.” Annual Meeting of the Canadian Anesthesiologists’ Society, 2006.
Awarded best paper in Ambulatory Anesthesia.V. Bykerk, C. Kitamura, G. Kraag, M. Bell, B. Haraoui, E. Keystone, and K. El Emam: “Establishment of a multicenter Canadian cohort of patients with early inflammatory arthritis enabled by a real time data collection tool.” Annual European Congress of Rheumatology, 2005. C. Bombardier, S. Solway, A. Wilkins, K. El Emam, J. Lee, and A. Sadikali: “eRheum: Integrating electronic capture and reporting of patient self-report data into the practice management of adults with Rheumatoid Arthritis.” Conference of the Canadian Rheumatology Association, 2005. K. El Emam: “The certification of eHealth software.” Canadian Society for Telehealth Conference, 2003. -
PhUSE: PhUSE De-identification Standard, May 2015. Institute of Medicine:Sharing Clinical Trial Data: Maximizing benefits, minimizing risk. National Academies Press, 2015. Health Information Trust Alliance: HITRUST De-Identification Framework, 2015. -
K. El Emam K, T.I. Leung, B. Malin, W. Klement, G. Eysenbach: “Consolidated Reporting Guidelines for Prognostic and Diagnostic Machine Learning Models (CREMLS)”. J Med Internet Res 26:e52508, 2024.
K. El Emam, W. Klement, B. Malin: "Reporting and Methodological Observations on Prognostic and Diagnostic Machine Learning Studies". JMIR AI, 2:e47995, 2023.
K. El Emam, B. Malin: "Introducing JMIR AI". JMIR AI, 1:e42046, 2022.
K. El Emam: "Enabling health information sharing with synthetic data." Privacy Law & Business, December 2021.
K. El Emam: "Could Synthetic Data Be the Future of Data Sharing?" CPO Magazine, August 25, 2021. K. El Emam and R. Boardman: “Are Clinical Trial Data Shared by the EMA Under Policy 0070 Really Public Data?”, Applied Clinical Trials, June 25, 2018. K. El Emam: “A Privacy Framework for Big Data Analytics in Public Health.” In Global Health and Diplomacy, Winter 2015. A. Cavoukian and K. El Emam: “Dispelling the Myths Surrounding De-identification: Anonymization Remains a Strong Tool for Protecting Privacy.” In Canadian Privacy Law Review 8(9), August 2011. B. Pascal, K. El Emam, and M. McCarrey: “Public Accountability and Transparency: the Missing Piece of the Privacy Puzzle.” In Healthcare Information Management and Communications Canada 24(4), December 2009. K. El Emam: “Protecting personal information through anonymization: An overview.” In Cutter IT Journal, November 2006. K. El Emam: “Industrial Evolution”. International Clinical Trials, Spring 2006. D. Barnes and K. El Emam: “Pain Point in Clinical Trials: Mitigating the Risk.” In Biotechnology Focus, March 2006. -
K. El Emam: “Synthetic Data” Un-redacted, The Sask IPC Podcast hosted by Ron Kruzeniski, 2022.
K. El Emam: “Replica Analytics” Privacy Tech Talk hosted by Carlos Chalico and Fahad Diwan, May 18, 2022.
K. El Emam: "A Synthetic Data Deep Dive: Privacy Protector, Foe or Other?” Data Security & Privacy hosted by Rebecca Herold, February 5, 2022.
K. El Emam: "Real or Fake: The buzz about synthetic data". Info Matters podcast, January 18, 2022.
K. El Emam: "Deciphering Deep Fakes & Synthetic Data". That Tech Pod, November 16, 2021. -
K. El Emam: “Precaution, ethics and risk: Perspectives on regulating non-identifiable data”, IAPP Privacy Advisor, May 24, 2022.
K. El Emam: “Five barriers to the commercialization of medical AI research”, The Hill Times, March 30, 2022.
K. El Emam and M. Hintze: "10 recommendations for regulating non-identifiable data", IAPP Privacy Advisor, September 28, 2021.
K. El Emam: “Accelerating AI with synthetic data”, IAPP Privacy Tech, February 26, 2020. K. El Emam and M. Hintze: “Does anonymization or de-identification require consent under the GDPR?”, IAPP Privacy Advisor, January 2019. K. El Emam and M. Hintze: “Are there risks of using public clinical trial data under GDPR?”, IAPP Privacy Advisor, July 2018. K. El Emam: “Setting the record straight on privacy dimensions in big data.” IAPP Privacy Tech, June 2, 2016. K. El Emam, T. Jefferson, P. Doshi: “Maximizing the value of clinical study reports.” The BMJ; August 27, 2015. D. Barth-Jones, K. El Emam, J. Bambauer, A. Cavoukian, B. Malin: “Assessing data intrusion threats” (Letter). In Science 2015; 348(6231):194-5. K. El Emam: “On Re-identification: Not really unique in the shopping mall.” IAPP Privacy Tech, February 20, 2015. K. El Emam: “Is it Safe to Anonymize Data?” The BMJ Blogs, February 6, 2015. K. El Emam: “Ten Tips for Privacy Officers on How to Monetize Health Data Responsibly” IAPP Privacy Perspectives, January 9, 2015. K. El Emam: “What are the Privacy Concerns when Sharing Clinical Trial Data?” The BMJ Blogs, December 19, 2014. K. El Emam: “Towards Standards for Anonymizing Clinical Trials Data”, The BMJ Blogs, December 5, 2014. K. El Emam: “Pseudonymous Data is Not Anonymous Data”, The BMJ Blogs, November 20, 2014. K. El Emam: “Public Health Surveillance and Privacy in the Age of Ebola”, IAPP Privacy Perspectives, November 18, 2014. A. Cavoukian, A. Dix, K. El Emam: “Consent and Personal Control are Not Things of the Past”, IAPP Privacy Perspectives, January 8, 2014. K. El Emam: “Anonymisation and Creepy Analytics”, The BMJ Blogs, October 22, 2013. K. El Emam: “Quality models.” Software Quality 1(2), 2005. K. El Emam: “Perspectives on software quality.” Software Quality 1(1), 2004. K. El Emam and S. Rai: “Evaluating predictions of faulty software using thresholds.” In the Annual Conference of the Statistical Society of Canada, 2000. K. El Emam and P. Fusaro: “News Column: Fraunhofer – Institute for Experimental Software Engineering.” In Software Process Improvement and Practice Journal 3(1), 1997. L. Briand and K. El Emam: “Software engineering R&D group at CRIM.” In Software Process Improvement and Practice Journal 2(1), 1996. K. El Emam, B. Shostak, and L. Briand: “Centre de recherche informatique de Montreal (News).” In Software Process Improvement and Practice Journal, 2(2), 1996. K. El Emam and D. R. Goldenson: “Some initial results from the international SPICE trials.” In Software Process Newsletter, IEEE Technical Council on Software Engineering No. 6, Spring 1996. L. Briand and K. El Emam: “Some issues in software engineering data analysis.” In the PERFECT Newsletter, 1995. -
K. El Emam, L. Mosquera, S. El Kababji: "The Replicability of Analysis Results Using Synthetic Clinical Trial and Real World Data", Aetion Generate webinar, 15 May 2024.
K. El Emam: "Generating and Applying Synthetic Health Data", HRDN Canada Discussion Session, 17 April 2024.
L. Pilgram: "The Utility Costs of Anonymization", 17 April 2024.
L. Juwara: "Mitigating Bias in Real World Health Data", 21 February 2024.
S. James: "Synthetic Data Use: Exploring use cases to optimize data utility", 9 March 2023.
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K. El Emam, D. Liu, J. Li.: Machine Learning R Package: SDGM, January 2024.
L. Juwara, A. El-Hussuna, K. El Emam: Code and data files for article "An evaluation of synthetic data augmentiation for mitigating covariate bias in health data", August 2024.
K.M. Cole, S. McGee, M. Clemons, M. Liu, F. MacDonald, L. Vandermeer, T.L. Ng, G. Pond, K. El Emam: R files for the article "Development and application of a weighted change score to evaluate interventions for vasomotor symptoms in patients with breast cancer using regression trees: A cohort study", August 2023.